Sometimes, life with Maura is like a roller coaster. This past week was one of those rides. But I think we’re back into the smooth part of the ride again.
This is one of the not-so-fun parts of not having a diagnosis. You don’t know what will happen next. I know that with some diagnoses, they can’t give you a lot of information. But with Maura, we have none. No case studies warning us that she might develop seizures. No other kids to let us know just how far she will progress or if she’ll develop other medical issues. It’s a constant high and low – more highs than lows. Highs come when she does something new or we can bump up our goals for her. Lows are when you discover that bending her the wrong way can cause a horrible charlie horse.
This past week has once again brought out my need to try to find a diagnosis. We’ve basically gone through all the doctors we can go through here. So now I’m eyeing specialists at the Cleveland Clinic, conveniently located about three hours away. I don’t expect answers, but at least I know I’ve tried. And who knows, maybe someday, my dream of being on “Mystery Diagnosis” will come true!
Wait – why “Mystery Diagnosis” you ask? Because to be on that show means we finally got an answer.
